Westport Women Raise Epidemic Awareness

Astonishingly, 52% of all American children are diagnosed with chronic illnesses.

That’s a broad definition — it includes allergies, ADHD, Asperger’s, irritable bowel and celiac disease, Lyme, hay fever and obesity — but it caught the attention of Jennifer Boyd and Julie Blitzer.

The women share the same initials, the same Westport hometown, and a desire to do something for that large population of kids with chronic diseases — and their parents.

They’re dissatisfied with most conventional treatment methods.

Julie Blitzer

They joined forces through Epidemic Answers, an organization that believes the rise in children with chronic diseases stems from “insidious environmental factors (beyond just ‘pollution’) that have been introduced slowly into our lives over the course of the past few decades.”

Epidemic Answers says these environmental influences destroy kids’ immune systems, affect their growth and development, and prevent them from living full lives.

The founder of the organization “recovered” her child from chronic illness. She now helps other mothers do the same for their kids.

Three years ago Julie — a therapeutic dance teacher — founded Authentic Matters. The group organizes classes, workshops and events for women who “seek to live with heightened awareness/ consciousness.”

Julie met Jennifer — a wellness practitioner — who says she “recovered” her 2 children from Lyme disease. Jennifer is now chair of Epidemic Awareness’ national board.

Another board member is Westporter Maria Rickert Hong. Jennifer says Maria “recovered” her child from sensory processing disorder.

Jennifer Boyd

“The first step is taking people down the rabbit hole of diagnosis,” Jennifer says.

“The next step is focusing on environment. There’s a saying: ‘Genetics loads the gun. Environment pulls the trigger.'”

She means the total environment — internal too. “It’s important to think about things like diet and gut flora,” she notes.

Next month (May 4, 7 p.m., Mora Mora in South Norwalk), Epidemic Answers sponsors a dance party. The goal is to raise awareness (and funds) for the organization’s film project, “Documenting Hope.” Jennifer is on the video’s advisory board.

Designing a dance party is important to the 2 women. Both are trained in dance therapy. (The event features “consciously curated appetizers and spirits” — along with a DJ.)

“There’s a gluten-free bread crumb trail to follow,” Jennifer says, referring to her belief that chronic illnesses need not last a lifetime.

“There’s hope to recover your child.”

(For more information on the “Dance for Hope” event, click here.)

 

Meet M.EAT

When Saugatuck Center opened a few years ago, Saugatuck (now Fleishers) Craft Butchery helped deliver the buzz.

Now — as Bedford Square attempts to draw folks downtown — it’s adding its own field-to-table butcher shop.

M.EAT Organic Beef & Provisions opens this spring. The “old-school meat market with new school fundamentals” offers high-quality beef and lamb from Uruguay, Argentina, New Zealand and Australia.

In addition to hand butchering, M.EAT will feature a “burger bar,” where customers can choose their own grind of meat types and fat content, accompanying organic cheeses and produce, as well as seasoning products, and cooking and equipment aids.

M.EAT will also carry domestic organic meat and chicken, with ingredients from local farmers and artisans.

It’s expected to open in late May.

Acorn Squash Soup Still Mmmmm Good — After 240 Years!

The Spotted Horse is not an old-fashioned place. It’s got a fresh menu, and a lively bar scene.

But it does call itself a “tavern.” It’s housed in a 215-year-old building.

And now it’s serving a dish from the Revolutionary War.

No, the acorn squash soup wasn’t made all those years ago. But it was popular then. And all the ingredients date from 1777.

The soup is tied in to the current Westport Historical Society exhibit. “The British Are Coming!” celebrates this month’s 240th anniversary of the Redcoats’ landing at Compo Beach.

(They were headed for Danbury, to burn an arsenal. We — well, some of our ancestors — surprised them along South Compo on the way north, then engaged them in a big battle on Compo Hill when they returned.)

As part of the exhibit, WHS board member Ed Hynes asked the restaurant to feature something from that period. They chose the soup.

Acorn squash was plentiful here then. Allspice — another key ingredient — was a popular import from the Caribbean.

Both Hynes and WHS immediate past president Ed Gerber have enjoyed the Spotted Horse soup. They call it “delicious.”

It will be featured all month.

At a 2017 — not, unfortunately, 1777 — price.

(For a full list of all “The British Are Coming!” events, click here. The exhibit runs through May 29.)

Acorn squash soup

The Race Is On!

It’s early in the race for 1st selectman.

But the first returns are in. The initial financial disclosure statements, that is.

Democrat Jonathan Steinberg — whose campaign committee is called “Jonathan for Westport” — has raised $100 since January 1.

Republican challenger Mike Rea (“Michael Rea for Westport”) more than tripled that figure. He pulled in $375.

Incumbent Jim Marpe and his new running mate Jennifer Tooker (“Marpe-Tooker for Westport”) are waaaaay in the lead. Since January 1, they’ve hauled in $13,930.

There’s still time to contribute. Election Day is November 7.

 

“Heart Moms” Pay A Bummer Bear Forward

Congenital heart defects (CHDs) occur in 1 out of every 100 births. The impact on babies — and their families — is profound.

Westporter Britt Sheiber is the mother of twin boys, Evan and James. They turn 1 on April 27 — her birthday.

It’s been quite a year. During Britt’s pregnancy, a 16-week ultrasound revealed Evan’s CHD. His type — “half a heart” — is extremely rare.

The Sheibers searched for the best treatment. They found it at Boston Children’s Hospital.

Evan was in the NICU for a few weeks. Britt drove to Westport every other day for a few hours, to see James and her 2 older children.

Finally, Evan came home. But he caught a cold, and ended up in the Yale-New Haven Children’s Hospital ICU.

A Bummer Bear.

That’s where he received a “Bummer Bear.” Passed on by the (coincidentally) Westport mother of another boy with CHD, it’s a special teddy bear. His zipper — representing the surgery scar — opens to reveal a tiny red heart, with little white stitches.

The mom sent an inspirational letter too.

The gifts gave Britt hope, and made her realize she was not alone. They helped her through Evan’s first open heart surgery — along with calls and texts from Ali Marcus.

Ali is another Westport mom whose son West was born with CHD. The women had  been introduced by mutual friends right before Britt gave birth to Evan, as West was preparing for his own surgery.

After Britt received her Bummer Bear for Evan, she paid it forward by sending one to Ali for West.

West Marcus loves his Bummer Bear.

Not long ago, the women heard about Fatemeh Reshad. The 4-month-old Iranian child — born with a congenital heart defect — was flying with her parents to Oregon for a life-saving procedure.

But when President Trump’s executive order banned travel from 7 countries, they had to cancel the surgery.

The women were stunned. As “heart moms,” they would go to the ends of the earth to get their children the best treatment possible. They knew Fatemeh’s mother was doing the same.

Britt and Ali posted Fatemeh’s story on social media. They reached out to their contacts at Yale-New Haven and Boston Children’s for help. After Governor Andrew Cuomo and the International Refugee Assistance Project intervened, the federal government allowed Fatemeh and her family into the US.

The women quickly sent Fatemeh a Bummer Bear, plus other gifts: a personalized pillow, cheerful button-up onesies, a pacifier/lovey for her chest, and cozy socks for Fatemeh’s mom. They added encouraging letters too.

Bummer Bear and assorted donations for Fatemeh, thanks to Westport’s “heart moms.”

Today, Britt monitors Evan’s oxygen numbers daily. They see his Boston cardiologist every few months. Evan will need another open heart surgery in a couple of years.

Britt takes care of him — and many others. Realizing the lack of awareness (and funds) for children with CHD, she founded Evan’s Heart Fund. All money goes to single ventricle research. This winter at JoyRide, she raised $27,000. Another fundraiser is in the works.

James (left) and Evan Sheiber today.

As for West: He’s a happy 1-year-old, chasing his 3 big brothers and 1 big sister. He too must be monitored every day for the rest of his life.

“Our family has been changed forever by this,” Ali says. “We are grateful for our hearts every day. What an incredible organ!”

So she, Britt and other moms stand ready to help the next heart mom, and the one after that.

It’s the heartfelt thing to do.

Photo Challenge #119

Last week’s photo challenge was posted the day after April Fool’s.

It was a bit of a joke — a postcard image labeled “View along Main Street, Saugatuck.” (Click here to see.)

Of course, there’s no Main Street in our Saugatuck. But there is in Saugatuck, Michigan.

Fred Cantor, Bobbie Herman, Peter Hirst, Rod Hurtuk and Mary Palmieri Gai all knew that there’s more than one Saugatuck in the world.

But wait! Elaine Marino — who seems to be Westport (Connecticut)’s foremost expert on Saugatuck, Michigan — commented that the postcard was mislabeled. She said it was actually the corner of Butler and Mason Streets. She added a few more factoids, including that the Michigan town’s founder was originally from Hartford. Yes, the Connecticut one.

Then Morley Boyd pointed out that there actually was a Main Street in our Saugatuck. It’s the same one that’s downtown today. The address was once Main Street, Saugatuck, because Westport was not named (and incorporated) until 1835.

However, we still do not have a Butler or Mason Street.

On now to this week’s photo challenge. If you know where in Westport you’d see this strange sign, click “Comments” below.

(Photo/Ed Simek)

You’ll Want Fries With This Squash

The Staples High School squash program is only 2 years old.

But in at least one respect, it’s similar to other, much longer established varsity sports: community service.

Last year, Shane Fries helped form Staples’ boys and girls squash teams. His dad introduced him to the game. As he took lessons he was attracted to its competitiveness, both individually and with teammates.

Last year he and fellow Stapleites Kion Bruno and Mia Krishnamurthy wanted to start a squash club. Athletic director Marty Lisevick gave approval for varsity status. They compete in the Fairwest League against Connecticut and Westchester public schools, and add private schools to the schedule too.

Staples High School’s boys and girls squash teams.

The athletes fund the venture themselves. They pay for court time — last year at Southport Racquet Club, now at Intensity. Costs range from $700 to $1,000 per player.

But they also raise money for others.

With the mission of using the sport to help students get into college, the National Urban Squash & Education Association runs a coaching and tutoring program called Street Squash.

In mid-March, Shane joined Staples students Jack Bautista, Tyler Edwards and Chloe Palumbo, plus Bedford Middle School’s Quinn McMahon, New Canaan’s Tara Chugh, St. Luke’s Haley Bloch and Street Squash player Nasir Finch at the Street Squash Junior Cup in Harlem.

Each team committed to raising as much money as possible. Thanks to anchor donor Jen Gabler, Staples players and their friends, the Wreckers donated over $12,000 to the program. The entire event brought in $82,000.

Shane Fries stands 3rd from right. Also representing Staples in the Street Squash event (from left): Tara Chugh, Haley Bloch, Chloe Palumbo, Quinn McMahon, Shane Fries, Tyler Edwards, Nasir Finch; Jack Bautista (kneeling).

“Squash is a big part of my life,” Fries — who also plays rugby — says. “Helping kids succeed through the sport is really cool.”

He’ll keep doing what he can. NUSEA runs a squash and education program in New Haven. That’s where Shane — who in his spare time is a Top Hat tutor — will spend his one-month senior internship in May, coaching and offering academic support.

Remembering Susan Ei

Alert “06880” reader and Westport resident Marcy Sansolo writes:

If you ever visited the children’s room at Pequot Library, you knew Susan Ei. And you felt her presence.

The children’s librarian for over 10 years — an unusual and beautiful woman, inside and out — died this week. She was 64.

Susan Ei

Susan had terrific energy, boundless enthusiasm, a genuine love of children, legendary patience, and a bunny kids could practice reading to.

She embraced all things Harry Potter, and never missed an opportunity to discuss a good book with good friends around a roaring fireplace.

She loved organizing potluck dinners, bike rides, holiday singalongs, and sleepovers under the stars on the library’s mighty front lawn.

Her summer reading programs were epic. She was tireless at the yearly book sale, even though it always falls during a massive heatwave.

In late 2003, I was still in shock over leaving the 212. My family and I found ourselves in Fairfield. I had discovered the Pequot Library within the first month. It was love at first sight.

Susan and my then-3-year-old became fast friends. Their relationship lasted well into the young adult section.

Jack is at Staples now. But when we returned to the Pequot for the book sale or a concert, we still made our way to the children’s room to see dear Susan.

Despite the countless people she met over the years, she never forgot us. We were always greeted by our first names.

In 2007 we brought a new puppy home. Susan knew how excited Jack was, and told him to bring the dog to the library. I cracked up with her, at the lunacy of having an untrained dog at a library.

It was one of the very few times the puppy was well-behaved. After he had a good smell of the library, he and my son climbed up on a couch. Susan captured the moment in this photo.

Jack, his dog and his book.

Out of the hundreds of images I have, this is one of my all-time favorites. I’ll forever be grateful she captured this moment in time.

In a world of skinny jeans and blown-out hair, Susan — with her braids and cowboy boots — was a breath of fresh air. I’ll never forget her kindness.

I know her many fans join me in sending love, light and strength to her beautiful daughters, husband, family, friends and colleagues.

Thank you, Susan. We miss you already!

(For Susan Ei’s full obituary, click here.)

Plan Ahead. Like, Waaaaaay Ahead.

The good news: The state Department of Transportation is “rehabilitating” 5 miles of the Merritt Parkway — in each direction — in Westport and Fairfield. That means “upgrades” to pavements, guardrails, drainage and “historic concrete.”

Semi-good news: The work will be done “largely” at night. Lane closures will be limited to between 7 p.m. and 8 a.m.

Really bad news: The project will last until August.

No, not this August. Or even next.

August of 2019. A mere 28 months from now.

And that’s just the “expected” completion date.

One final fun fact: The $56.7 million project is being handled by Manafort Brothers, Inc.

Happy motoring!

This Jackass Saw The Trader Joe’s Entitled Parker, And Took Up The Challenge

Anyone who has spent time in the Playhouse Square shopping center — or who (ahem) lives in the condos behind it — knows that parking is a special version of hell.

But today it was even more clusterf—ed than usual.

The driver below invented his own spot. And — according to an alert “06880” reader, who sent a series of photos — he was there from (at least) 1:21 p.m. through (at least) 1:40 p.m. “Probably longer,” the photographer says.

Hey, the post office line must have been especially long. You know, with tax day coming up soon and all.

Here’s another view:

And just in case you want a closeup:

But give the guy* props:

He owns a Maserati!

And — unlike Monday’s Trader’s Joe guy — those are not New York plates.

He bought his beautiful, expensive, I-can-park-wherever-I-want-to car right down the street, in Westport.

* It’s gotta be a guy, right?