Tag Archives: #ALSPepperChallenge

Remembering Patty Haberstroh

Patty Haberstroh — a longtime beloved Westporter, who in decades of service touched the lives of countless residents, and whose courageous 6-year battle against ALS (Lou Gehrig’s Disease) inspired many more — died peacefully on Monday, at Yale New Haven Hospital. She was 73.

Patricia Clark Haberstroh’s 20 years as a social worker in Westport’s Department of Human Services were dedicated to helping others in need.

Patty Haberstroh

As family program coordinator, Patty ran and supported countless important initiatives: the annual Back-To-School program that offers backpacks, school supplies and shoe store gift cards to hundreds of children from low-income families; the Family Holiday Giving program, which provides Westport children in need with holiday gifts; the Westport Mentor program; summer camperships; after-school scholarships; Thanksgiving dinner donations; MLK Day basketball clinics; Minds in Motion, and Prom and Graduation Gowns programs.

Patty also took immense pride in volunteer work for Westport’s public schools, serving as PTA president of Coleytown Elementary and Staples High Schools, and on the PTA Council.

One of her proudest achievements was as a member of an ad hoc committee to reject a referendum attempt to cut town education expenses by $1 million in the mid-1990s.

Around that time, Patty also was a key member of the “new” Staples High School planning committee.

She was a masterful storyteller and, most importantly, a trusted colleague and friend. In Westport, she cultivated a vibrant community of true friendships built and tended to over a myriad of Friday Pizza Nights.

Her dogged commitment to helping others was only bolstered in October 2017, when she was diagnosed with her terminal illness.

Faced with a degenerative disease with no cures or effective treatments, Patty sought to reverse that fate for current and future generations of people living with Lou Gehrig’s Disease.

Shortly after her devastating diagnosis, Patty became an influential leader in the ALS community through her relentless advocacy and fundraising efforts. She and her family launched the viral #ALSPepperChallenge campaign on social media, raising over $1 million for ALS research, largely benefiting the ALS Therapy Development Institute (ALS TDI).

Thousands of supporters from around the world posted videos of themselves eating hot peppers in honor of Patty, and to raise awareness for ALS. Celebrities like Kelly Clarkson, Jimmy Kimmel, Andy Cohen, Shaquille O’Neal and Charles Barkley participated in the challenge, chomping on jalapeños and habaneros on national television.

Patty never liked spicy food, but happily devoured it for the cause.

Patty Haberstroh and others suffering from ALS were honored by NASDAQ in New York City, in 2018.

Patty was deeply honored to receive ALS TDI’s 2018 Stephen Milne Adventurous Spirit Award for her selfless advocacy, and MDA’s Wings Over Wall Street Spirit Award in 2020.

Her unwavering tenacity inspired her sons to help launch a grassroots Lou Gehrig Day committee. Beginning in 2021, they established an annual awareness day every June 2, in honor of Lou Gehrig and across all of Major and Minor League Baseball.

There are only 3 such days in MLB, where a league-wide athlete and associated cause is celebrated by all teams.

Born November 23, 1949 in New York City, Patty was the daughter of the late William Lee Clark and Patricia Braden Clark, who nicknamed young her “The Unsinkable Molly Brown” and “Pollyanna.”

The oldest of 4 children, Patty attended Darien High School, then graduated from Smith College with a BA in government.

An avowed feminist, Patty started her career in finance at Bank of Boston. Upon hearing that her male trainee counterparts earned more than female trainees, she marched into Human Resources.

After hearing traditional arguments of why the pay imbalances were justified, Patty successfully secured equal pay for all.

In Boston she met her husband Charlie Wesley Kelakos Haberstroh, who was also a banker.

When Patty and Charlie married in September, 1974, she relocated to Chemical Bank in New York — appropriately enough in Human Resources, to manage the Performance Evaluation Function.

After the birth of her second child, she requested a part-time job.  When her employer asked her to reconsider, pointing out she would have to give up her management job, she said she would accept only a part-time job in order to tend to family. When informed there was no part-time job, Patty requested the bank to create one.

They did.

In 1986, with 4 children under the age of 6 in tow — including twin newborns — Patty and Charlie moved the family to São Paulo, Brazil, to support Charlie’s career.

After 4 1/2 years there, and becoming fluent in Portuguese, the Haberstrohs moved to Westport, where she committed her life to public service and education.

Patty is survived by Charlie, her husband of 49 years and caregiver for 6; her children Chuck (Jacqueline Horelik) of Westport; Steve (Erin Graves) of New Canaan; Kim O’Sullivan (Philip) of Norwalk; Tom (Allison Hall) of Charlotte, North Carolina; grandchildren Charlie, Lane, Eve and Grace of Westport; McIntyre (Mac) and Walker of New Canaan; Jonathan O’Sullivan of Norwalk; Madelyn and Molly of Charlotte, NC; her younger brothers William (Susan), Hayes (Clare) and Robert Clark; nieces Katie, Debbie and Joanie, and nephews Braden, Lee and Christopher.

A celebration of Patty’s life will be held in early Fall in Westport. In lieu of flowers, please consider a donation toALS Therapy Development Institute, Compassionate Care ALS and Human Services of the Town of Westport.

(“06880” covered the explosive growth of the #ALSPepperChallenge, in Westport and around the world. Click here for some of the stories about the global event.)

How You Gonna Keep ‘Em Down On The Farm? ALS Pepper Challenge Spreads To WTF

The Haberstroh family’s #ALSPepperChallenge has spread all over the country.

But right here in Westport, it’s bearing particular fruit.

The latest group to raise money for research into the devastating disease — in honor of Department of Human Services program specialist Patty Haberstroh — is Wakeman Town Farm.

Challenged by Parks & Rec — whose commission chairman is Patty’s husband, Charlie — Liz Milwe and Christy Colasurdo decided to be creative.

Taking her cue from “Rapper’s Delight,” Christy wrote lyrics. Corey Thomas — WTF’s talented steward — showed his versatility as the rapper.

The video was filmed yesterday at the farm, after their annual team retreat. It’s already been viewed over 450 times on Instagram, and 400 times on Facebook.

Wakeman Town Farm was not the only organization in town taking the hot pepper challenge yesterday. Staples High School’s boys basketball team did the same — and were inspired by a visit from both Patty and Steve Haberstroh, a former Wrecker hoops star (and Patty and Charlie’s son).

Haberstroh noted that Jon Walker — a 1988 Staples grad, and another famed Wrecker basketball player — died last year of ALS.

Coach Colin Devine (far left) and members of the Staples High School boys basketball team take the #ALSPepperChallenge yesterday.

The Haberstrohs’ challenge has raised nearly $220,000 so far. That includes a $100,000 anonymous donation. Another $250,000 anonymous pledge is expected this week.

(Click here for the Haberstrohs’ hot pepper challenge donation page.)

Greens Farms Dares Other Elementary School: Take The ALS Pepper Challenge!

Every holiday season for years, Greens Farms Elementary School students, staff and parents have raised money to purchase gifts and necessities for needy Westport families. One of their major fundraisers is a Walk-a-Thon.

Patty Haberstroh — the Department of Human Services program specialist in charge of the town holiday giving program — has always supported the Walk-a-Thon, and all of GFS’ efforts, fully and enthusiastically.

Each year, she tells the kids how wonderful their contributions are, and how much they’re helping neighbors in need. She inspires everyone, of all ages, to do as much as they could.

Now Patty’s been diagnosed with ALS. And Greens Farms El is supporting her just as energetically as she’s done for them.

The other day, students, teachers, administrators and parents — some of whom no longer have children at the school — came together.

The event was the #ALS Pepper Challenge. Principal Kevin Cazzetta, assistant principal Christopher Breyan, phys. ed teacher Lisa Thomas, music teacher Suzanne Propp and seven parents ate hot peppers — after, of course, soliciting funds to do it. Money raised will benefit ALS research.

In the video below, parent Melissa Levy explains how much Patty means to Greens Farms. Then parent Kathryn St. Andre mentions the song the Walk-a-Thon participants always sing with Ms. Propp: “I Wish.”

The highlight comes at the end of the video. Greens Farms students challenge all the other elementary schools in town — well, the staff and parents there, anyway — to take the ALS challenge in honor of Patty.

Game on!

(Click here for the Haberstrohs’ hot pepper challenge donation page.)

Board Of Ed Takes ALS Hot Pepper Challenge

The other day, Jim Marpe took the ALS Hot Pepper Challenge.

Last night — rising to the 1st selectman’s challenge — it was the Board of Education’s turn.

Superintendent of Schools Colleen Palmer and the 7 board members each ate a habanero or jalapeño — at the same time pledging money for research into the devastating disease. Challenging others to do so raises even more funds.

Westport has gotten involved thanks to the Haberstroh family. Department of Human Services program specialist Patty Haberstroh was diagnosed with ALS last fall.

Board members challenged an array of prominent Westporters, including Senior Center director Sue Pfister, library director Bill Harmer, the entire Board of Finance — and Grammy/Tony/Emmy-winning songwriter Justin Paul.

Check out the video below. (Spoiler alert: It does not include the money shot — what happened after the educators ate their peppers. Hopefully, a quorum remained to conduct business.)

(Click here for the Haberstrohs’ hot pepper challenge donation page.)

Look Who’s Taking The Haberstrohs’ Hot Pepper Challenge!

When word got out that Patty Haberstroh’s family was promoting a hot pepper challenge to raise funds for ALS research, some big names responded:

Shaquille O’Neal. Charles Barkley. Domonique Foxworth. Dan Le Batard. The Miami Heat.

Now the popular Department of Human Services’ program specialist’s fellow town employees have done the same.

Yesterday 1st Selectman Jim Marpe, Staples principal James D’Amico, assistant principals Jim Farnen and Rich Franzis, and former principal John Dodig gathered at Town Hall.  After a bit of banter, they all ate eye-tearing, sinus-clearing, unfathomably hot habaneros.

It was not easy. But they did it for Patty.

And when they were done, they challenged others to do the same.

D’Amico dared the Staples science department (whose chair grows his own peppers). Farnen challenged the Staples athletic department (which includes me, as Staples boys soccer coach — yikes!). Dodig named the guidance department.

Marpe topped them all. He dared the entire Board of Education — and superintendent of schools Colleen Palmer — to eat a habanero or jalapeño.

Videos will be posted soon.

But don’t laugh too hard. We may challenge you next.

(Click here for the Haberstrohs’ hot pepper challenge donation page. Video by Justin Nadal, Staples High School media lab instructor.)

BONUS VIDEO: Check out this new video. It features plenty of celebrities — and tons of Westporters too. And after you click on — please keep the ALS Pepper Challenge going!