Category Archives: Staples HS

Staples Administrator: “We Have Lost Someone Special”

Pat Micinilio is Staples High School’s assistant principal for the Class of 2025.

That’s the senior class Max Harper was part of.

In the aftermath of his tragic death yesterday, in a dirt bike accident, the assistant principal offers these thoughts. He incorporates some insights from Max’s counselor, Mattie Sokoloski.

Max was a beloved student at Staples High School.

I know this is said too often, but Max truly did have a larger-than-life personality.

He had only been at Staples for a little over a year, but he made his presence known from the moment he stepped onto campus.

Max Harper

He had an engaging and warm personality, filled with enthusiasm and happiness. Because of his genuine warmth, he quickly made friends here, and had so many of them.

Students were drawn to him, as evidenced by all of the kids who sat with him at lunch, walked with him in the hallways, or worked out with him in the fitness center after school.

He was such a bright spot in so many people’s day. And he had, perhaps, the best manners of any teenager with whom I have ever worked.

He was a “please” and “thank you” kid. No matter what kind of conversation we had in my office, he ended every one of those conversations with “I appreciate you.”

In fact, those were the last words he said to me.

Max loved to chat it up with many of us about his future plans. He had so many dreams and ambitions.

He often talked of wanting to start up new and unique businesses. From a clothing line to a construction business to working on automobiles, he had his sights high.

With Max’s personality, there was no doubt he would have had an amazing future in whatever avenue he decided to explore.

Max truly discovered his true self here at Staples, and flourished. He helped to make our school a brighter place by his sheer presence.

Staples assistant principal Pat Micinilio (right), speaking about Max Harper at this morning’s Compo Beach memorial. (Photo courtesy of Inklings)

Max was strong-willed and passionate about the people and things that were important to him. His ability to connect with others, no matter who they were, was unmatched.

He never shied away from a conversation or meeting someone new.

Even if you only met Max once, he was a friend for life. He greeted everyone in the hallway, no matter if he knew them or not.

His kind, laid back and fun-spirited nature made his peers gravitate to him. To know Max was to love Max.

His love for life and his big dreams were an inspiration to all. His impact on our school and our community is a true testament to how special a person Max is. He was one of a kind.

The loss we are feeling now is because of how special Max was, and how much he meant to so many at Staples.

Staples Community Honors Max Harper

Hundreds of Staples High School students gathered this morning at Compo Beach, for an emotional memorial to senior Max Harper.

The 18-year-old was killed yesterday on his dirt bike, in a collision with a truck near his Old Hill Road home.

The event — organized by students, and held an hour before a delayed school opening — included words from Max’s father, several friends of Max’s, and family friends; Ed Wooldridge, Staples’ school resource officer; and Pat Micinilio, assistant principal for the Class of 2025.

Many students brought flowers. Somberly, they placed them in the water, then watched them bob gently in the quiet tide.

Max Halper’s father embraces a memorial attendee. (All photos/Luca Caniato)

(Photo/Andrew Colabella)

 

Westport Mourns Staples Senior Killed In Motorbike Accident

An 18-year-old riding a dirt bike was killed this afternoon, in a collision on Old Hill Road.

Maximilien Harper, a Staples High School senior, was riding south on Old Hill Road, just south of Partrick Road, shortly after 3 p.m.

The driver of a loaded dump truck traveling in the other direction tried to avoid the dirt bike, on a sharp corner. The truck veered off the road, hit several trees and rolled on its side.

Max was fatally injured in the collision.

The dump truck driver was transported to the hospital with non-life threatening injuries.

The crash is  under investigation by the Westport Police Detective Bureau and Westport Police Accident investigation Team, assisted by Fairfield Police Accident Investigation Team.

Westport Police Chief Foti Koskinas extends the condolences of the department to Max’s family.

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Superintendent of schools Thomas Scarice says:

“I truly don’t know how to start this message. These are among the hardest messages to deliver and process, as both a father and a member of the WPS community. Tonight, as I embrace and say goodnight to my 16-year-old son, my mind will be miles away.

“Max Harper’s loss is heartbreaking for our school and extended community. I know many of you will feel its impact in the days ahead.

“In moments like these, words just fall short. But what we can offer is our unwavering support to those affected by this tragedy, beginning with Max’s family. Please come together during this difficult time. Lean on one another, and extend compassion to those who are grieving.

“In order to ensure that our faculty and staff are fully prepared to appropriately receive our students tomorrow, Staples High School will operate on a 2-hour delay.  All other schools will open at their normal times.

“The entire faculty will come together, grieve, and be provided guidance and language on how to support our students when they arrive, when they see them in Connections, and also throughout the day.

“For any students needing support prior to the opening of school, the Staples counseling staff will be available to provide support to individuals and small groups of students.

“Staples principal Stafford Thomas will send a follow up email this evening to the Staples families and staff outlining the plans for the day, beginning with the early morning support, and the measures put in place to support students.

“All athletic games will be canceled Thursday, but teams will be permitted to meet for light practices or team meetings in order to provide students a place to be with one another after school.

“Finally, as you say goodnight to your children and loved ones, remember this moment and how precious our time together truly is.”

With heartfelt sympathy,
Thomas Scarice
Superintendent of Schools

 

 

Unsung Heroes #350

The running community is special.

They’re fit, but friendly. They’re competitive, but close. They run for various reasons — to win a race, do their personal best, or simply finish — and at various paces, but they all love to run.

And they don’t get a lot of publicity.

For an activity that’s been around for over 60 years, the Westport Road Runners races get very little attention.

Unless you’re near Compo, Burying Hill Beach or Longshore on a Saturday morning, you don’t know the long-running (ho ho) series even exists.

The series of 10 races — each longer than the week before — culminates in a 10-miler the Saturday before Labor Day.

Road Runners was one of the only such events when it began in the 1960s. The Labor Day race was particularly popular, attracting some of the top athletes in the Northeast.

Westport’s Parks & Recreation Department has sponsored Road Runners since its inception. Co-sponsors now include Pequot Runners and Fleet Feet. The selectwoman’s office and Police Department offer important assistance.

And they’re off! The start of a Westport Road Runner race.

But the man making it work for nearly all that time — all but 3 of its 62 years — is Laddie Lawrence.

A star runner in Staples High School’s Class of 1964 — and now, for well over 50 years — the Wreckers’ cross country, indoor and outdoor track coach — he does it all.

He sets up the course, oversees every aspect of each race, then cleans up. There would be no Road Runners without Laddie Lawrence.

He just finished his 59th year as Road Runners director. If that sounds like a long time: It is.

Lawrence was recently recognized as the longest-serving race director in the world by Road Race Management Inc.

Laddie Lawrence, at a Road Runner race finish. 

Of course, he cannot do it all himself.

Regulars who have served for years include Jim Gerweck, Charlie Wolgast, Ray Prezkop, Dave Parise, Anne Parise and Mary Parise.

This year’s group of recent alumni or current Staples athletes includes Morgan Samuel, Will Boberski, Oliver Samuel, Jonas Varnas, Michael Bernier, Ben Buchalter, Alex Price, Luke Rabacs, Daisy Seaborne, Preston Siroka, Nate Hordon, Mikhail Mikhalchuk, Oliver Galin, Connor O’Neill and Samuel Zwick Lavinsky.

All are today’s Unsung Heroes.

But Laddie Lawrence wins this week’s gold.

(Unsung Hero is a weekly “06880” feature. To nominate a hero, email 06880blog@gmail.com. To support our work, please click here. Thank you!)

Photo Challenge #506

It took oh, I don’t know, about 20 years for the town to agree to put lights on the Staples football field.

(Full disclosure: My parents’ neighbors — though not them — on High Point Road were some of the biggest obstacles.)

The lights have been there for over a decade. The result: increased attendance and enthusiasm at football and lacrosse games, and other sports. More opportunities for practice for athletes on many teams.

And no issues with neighbors.

The lights at what is now called Paul Lane Field were the focus of last week’s Photo Challenge. (Click here to see.)

Diane Bosch, Diane Silfen and Dan Vener all correctly identified the scene.

There were not a lot of responses, on Labor Day weekend.

Maybe everyone was out playing games.

Now — just in time for the change of seasons — here is this week’s Photo Challenge. If you know where in Westport you’d see this, click “Comments” below.

(Photo/Patricia McMahon)

(Every Sunday, “06880” hosts this Photo Challenge. We challenge you too to support your hyper-local blog. Please click here to make a tax-deductible contribution. Thank you!)

Roundup: Long Lots Target Date, Video Game Magic, “100 Human Stories” …

Surprise!

The start of construction on the new Long Lots Elementary School — originally planned for this fall — will not take place until next year.

That’s the most recent news from the Long Lots School Building Committee, which met Thursday for the first time since May.

As a result, the 125,882-square foot school will open later than the anticipated September 2026 date.

Site plan for the new Long Lots Elementary School.

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JT Penny understands the power of video games.

And not just because the Staples High School senior is ranked among the top 350 Overwatch players in North America.

He knows that gaming relieves stress, reduces boredom, and offers an escape into a digital playground when times are tough.

JT also knows that, for some children, video games can be actual lifelines.

In addition to defending his Grand Master gaming title — and rowing with the Saugatuck Rowing Club varsity — JT has partnered with a national non-profit charity.

Gamers Outreach has one mission: provide specialized video game stations (“GoKarts”) to kids receiving treatment or recovering in hospitals.

Over the past year, JT collected donations by livestreaming video game playoffs on Twitch from home, and at the Stream-A-Thon hosted by Gamers For Giving at Eastern Michigan State University.

On Wednesday, JT delivered his first GoKart to Yale New Haven Hospital’s Pediatric Unit.

It’s a great partnership. Through the process, JT worked closely with Yale New Haven’s child life gaming and technology specialist Tyler Mahoney.

JT has mastered a high-level video game. He’s won big crew races. Both are great accomplishments.

But his real prize is empowering hospitalized kids, at a time they need it most.

JT Penny (left) and Tyler Mahoney of Yale New Haven Hospital with JT’s GoKart donation, ready for its first patient/gamer. 

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Ever since the October 7 Israeli massacre by Hamas, Haaretz reporter Lee Yaron has been at work investigating the lives of some of the victims. She’s spoken with survivors, their family members, and first responders in Israel and beyond.

“100 Human Stories” will be published this fall.

On October 14 — one year and one week after the first anniversary of the attack — she’ll be at Temple Israel (7 p.m.). She’ll speak with Rabbis Michael Friedman and Evan Schultz about the events of 10/7, and their continuing impact on Israel today.

The event is free, but pre-registration is required. Click here for details. (Hat tip: Sal Liccione)

Lee Yaron

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Three exciting and diverse events have been added to the Westport Country Playhouse fall calendar.

At “Perfectly Westport: A Fireside Chat with Westport’s Bestselling Author Emily Liebert,” the “Perfectly Famous” writer chats with Westport Magazine editor-in-chief Samantha Yanks about story inspiration, finding an agent, getting published, editing, ghostwriting for celebrities, and balancing career and motherhood.

It’s September 30 (7 p.m.). Click here for tickets, and more information.

Hitchcock fans will enjoy “Rear Window: A Night of Suspense.” In advance of the WCP production of “The 39 Steps,” there’s a special screening of the “Rear Window” movie.

Artistic director Mark Shanahan — a Hitchcock scholar and fan, who taught a course on the director at Fordham University for over 21 years — shares his knowledge and insights about Hitchcock.

He’ll highlight key details to watch for. After the movie, Shanahan will explore why “Rear Window” is such a classic.

It’s October 2 (7 p.m.). Click here for tickets, and more information.
Then comes “Ghost Stories and Legends” — an evening of classic stories of the supernatural with Broadway’s John Rapson (“Sweeney Todd,” “Les Misérables”).

He’ll present a special version of his solo show of Washington Irving’s “The Legend of Sleepy Hollow,” plus other ghostly tales.

It’s October 10 (7 p.m.). Click here for tickets, and more information.

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The Westport Library is a place of stories — literally, and metaphorically.

They’ll be at the forefront on Saturday, September 21, when StoryFest — the annual literary festival — features over 50 authors.

Each comes to the Library to discuss their work and experiences, and connect with fans, readers and fellow writers.

StoryFest’s Saturday concludes with The Lance Lundberg Masters Series Presents: The Power of Story.

Featured authors include Clay McLeod Chapman, May Cobb, Gabino Iglesias and Cynthia Pelayo.

The evening also includes a performance by author/puppeteer GennaRose Nethercott, a story told by acclaimed photographer Jesse Freidin, and an appearance from Northeast Storytelling President ChaChanna Simpson, who oversees the Library’s Storytelling Sundays monthly series.

The Power of Story kicks off at 7 pm in the Library’s Trefz Forum. Light refreshments will be served.

StoryFest writers include (clockwise from top left): Clay McLeod Chapman, May Cobb, Gabino Iglesias, ChaChanna Simpson, Jesse Freidin, GennaRose Nethercott, and Cynthia Pelayo).

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The switch of 95.9 The Fox — from rock to simulcasting WICC’s news and talk format — has Westport connections, beyond listeners losing a longtime Fairfield County music staple.

WFOX is owned by Westport-based Connoisseur Media. It says the move was made in part because of the departure of New York’s WCBS Newsradio 880.

The other “06880” angle: Westporter Lisa Wexler, host of a very popular morning talk show on WICC, will now be heard by many more listeners.

Lisa Wexler

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How old is the universe?

Pretty old. 13.8 billion years (give or take a hundred million years).

Don’t take my word for it. Ask David Weintraub.

The Vanderbilt University professor of astronomy discusses “How Old is the Universe?” at the Westport Astronomical Society’s next virtual lecture  (September 17, 8 p.m.). Click here for the link.

A spectacularly small portion of the very old universe.

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Our “Westport … Naturally” feature sometimes showcases egrets doing their thing: hanging out, looking smooth, in water.

This one is doing its other thing: soaring majestically, above the Riverwalk by the Westport Library.

Kudos to Johanna Keyser Rossi, for this very cool capture:

(Photo/Johanna Keyser Rossi)

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And finally … in honor of our 13.8 billion-year-old universe (story above):

(“06880” is where Westport meets the world — and the universe. But we can’t do it without our loyal readers’ help. Please click here to make a tax-deductible contribution. And thank you!)

 

Board Of Ed: Redistricting Timeline, Enrollment Numbers

It’s early September.

Kids (and staff) have been back in school for over a week.

The Board of Education is back in action too.

They’ve got a full plate this year. (Though I can’t imagine any year when they don’t.)

Among the items to tackle: elementary school redistricting.

Last night, at the BOE meeting in the Staples High School cafeteria, superintendent of schools Thomas Scarice was expected to address that topic.

The timeline he planned to propose includes:

  • September 19: First presentation of options by demographer Mike Zuba, for public discussion
  • October: Continued public discussion
  • Winter/spring: Review
  • Summer/fall 2025: Phase I implementation (for Bedford Middle School feeder schools).

Planning would then continue in 2025-27 for Phase II (for Coleytown Middle feeder schools). That phase is predicated on the opening of a new Long Lots Elementary School for the 2026-27 school year.

Scarice was expected to note that redistricting is driven by resources, not finances.

While there is no “crisis,” there is a need to “modestly rebalance” the elementary schools, due to enrollment influxes seen since the pandemic. Officials also expect an enrollment spike at Long Lots, following construction of a new building.

Among the criteria Scarice listed in prepared remarks:

  • Adherence to natural boundaries; keeping neighborhoods together “to the greatest extent possible.”
  • Prioritizing proximity (minimizing travel distances, where possible)
  • Minimizing student disruption “to the greatest extent possible.”

In addition, Scarice was expected to say, no student will be redistricted more than once (unless the family moves).

“Grandfathering” 5th graders will be considered, based on capacity and “operational considerations.

A new Long Lots Elementary School is expected to drive enrollment in that district. (Drone photo/Brandon Malin)

Enrollment figures prepared for last night’s meeting show that as of August 30, the Westport Public Schools had 5,210 students in grades K-12. That’s 73 fewer than called for in budget projections.

That number will change. A second report will be provided after the October 1 to present numbers to the state Department of Education.

At the elementary schools, Coleytown had 37 fewer students than projected, meaning one less kindergarten section than budgeted for.

Greens Farms has 8 fewer students than projected, with one less 1st grade section.

Kings Highway also has 8 fewer students than projected, but no changes in the number of sections (24).

Long Lots has 13 fewer students than projected, but maintains 29 sections.

Saugatuck has 1 more student than projected. Based on disbursement of students, additional sections have been added at grades 3 and 4.

Saugatuck is the only elementary school to see an increase in enrollment this year. (Photo/John Videler for Videler Photography)

The 2 middle schools saw a total decrease of 16 students, while Staples High has 8 more students than projected. The largest classes are freshman and junior.

As of August 30, assistant superintendent John Bayers was to report to the BOE, Westport Public Schools have hired nearly 60 new staff members. Interviews were continuing, to fill remaining vacancies.

The new hires include 27 certified staff members, 3 of whom are administrators.

That’s a decrease of 21 certified staff from last year, though 5 vacancies remained.

The 30-plus non-certified staff include paraprofessionals, secretaries, custodians, and building and long-term substitutes.

The district also welcomes 5 interns, and 19 student teachers.

Scarice was expected to make a presentation to the Board of Education on the “No Place for Hate” program.

Run in partnership with the Anti-Defamation League, it’s a district-wide effort to address bias, bullying and hate speech.

Coleytown Middle School faculty member Faith Sweeney will serve as the district’s program coordinator.

(Education is important to Westport. It’s part of our mission to deliver news and information, 24/7/365 — but we can’t do it without your help. Please click here to support our work. Thank you!)

“The Apprentice” Fights Back

Everyone in America has heard of “The Apprentice.”

The quasi-real TV series featured eager businesspeople battling for a $250,000 contract. It made “you’re fired!” a national catchphrase, and catapulted Donald Trump onto the path to the presidency.

You may not have heard of the movie version of “The Apprentice.”

At least, not yet.

The film explores a young Trump’s rise to power, beginning in the 1970s with attorney/fixer Roy Cohn.

It debuted at the Cannes Film Festival in May, and earned an 8-minute standing ovation. Its North American premiere at Telluride last weekend was equally successful.

But because the film offers “an unfiltered look at Trump’s complicated and often unseemly journey,” his campaign issued a cease and desist order. They hoped to halt its release in the US — at least before the November election.

It was reported that Trump (who had not seen the film) was particularly incensed by scenes that depict him raping his first wife, Ivana; abusing amphetamines to lose weight, and undergoing liposuction and plastic surgery to remove a bald spot. (The rape scene was based on divorce records.)

Legal threats caused major media companies to shy away from distribution.

“The Apprentice” stars (from left) Sebastian Stan as Donald Trump, Jeremy Strong as Roy Cohn, and Maria Bakalova as Ivana Trump. 

Filmmakers are now pursuing a grassroots, independent approach. It is scheduled for limited theatrical release on October 11.

That’s good news for the cast, crew and producers of “The Apprentice.”

Including the writer, Gabriel Sherman.

The 45-year-old attended Kings Highway Elementary, Bedford Middle and Staples High School (through 10th grade).

After graduating from Holderness School in New Hampshire and Middlebury College (2001), he wrote for New York magazine and Vanity Fair. He’s been a regular contributor to NBC News and MSNBC.

In 2014, Sherman wrote a biography of Fox News Channel president Roger Ailes called “The Loudest Voice in the Room: How the Brilliant, Bombastic Roger Ailes Built Fox News – and Divided a Country.”

He began work on “The Apprentice” in 2018.

Gabe Sherman

Hoping for widespread distribution before the election — and fearing possible retribution after, if Trump wins — the film’s backers have started a Kickstarter campaign.

The goal is to raise $100,000, to enable additional distribution beyond the first 17 cities where it is planned to be screened.

As with all Kickstarter projects, donors will be charged only if full funding is secured.

That seems likely. The deadline is September 29. In just 2 days, nearly the entire amount has already been raised.

Donors are offered streaming rights, tickets to a preview screening, on-screen memorabilia from the production, access to the filmmakers — and their name in the credits.

Not far from Gabriel Sherman’s.

(Click here for the Kickstarter link.)

(“06880” regularly highlights the careers of Westporters, past and present. To support our work, please click here. Thank you!)

Rob Eichler: ALS Story Comes Full Circle

Rob Eichler — a 1971 Staples High School graduate, who was involved in Players, the music program and more — now lives in Peterborough, New Hampshire, with his wife Martha. His sister Lissie lives nearby; so does John Zurich, a longtime Westport friend.

Rob Eichler, in the Staples 1971 yearbook.

A year ago, Rob was diagnosed with ALS (Lou Gehrig’s Disease). It has progressed rapidly.

John suggested an article on ALS research. There’s a hook: a story Martha wrote about Rob’s dad, Jack Eichler — a longtime Westport resident. 

Here it is. It shines an important light on the disease, and on its impact on several former Westporters.

Martha wrote:

Jack Eichler, Rob’s dad, was a quiet, kind, methodical man whose pocket protector and slide rule were ever-present in his shirt pocket.

He was an Eagle Scout as a teen, then later a Boy Scout leader and beekeeper.

Jack was also a pilot in World War II, carrying parachute troops, towing gliders, and transporting soldiers between the US, Central America and Africa, with 182 ocean crossings.

Later he flew recreationally with a flying club out of Bridgeport, and taught flying and instrument flight aviation.

He became a mechanical engineer, and invented a machine to insert fruit filling into strudel at Pepperidge Farm. Another invention was circular windshield wipers for airplanes.

Like Rob, Jack was a man of many talents. Until Rob was diagnosed with ALS, I had completely forgotten about another of Jack’s significant accomplishments.

One of Jack’s best friends, nuclear physicist Hugh Neale, suffered from ALS. Though Hugh became paralyzed, he could still use his eyes to communicate because eyes are not incapacitated by ALS.

With Hugh, Jack designed a device called the ETRAN Communicator: a rectangular plexiglass window, with a smaller rectangular hole cut out of the middle.

Clusters of letters and numbers were embedded at certain spots around the perimeter of the ETRAN window. Hugh could communicate by indicating certain letters or numbers with a glance of the eyes.

With Hugh on one side of the ETRAN and an observer on the other side, the observer could register which letters Hugh’s eyes selected, and string the letters together into words and sentences.

Using the ETRAN Communicator.

Jack donated the ETRAN Communicator to humanity. He never expected or received any remuneration.

Rob recalls Jack telling him that he called this device “ETRAN” because those ar 5 of the 8 most-used letters in the English language.

In 1982, the ETRAN Communicator was underwritten by the Fran and Warren Rupp Foundation for production and distribution. Jack and Warren Rupp were fraternity brothers at Case Institute of Technology (now Case Western Reserve University).

More than 1,000 requests for the device from all 50 states were fulfilled that year. Additional orders came from Australia, Canada, England, and non-English speaking countries.

One ETRAN board was issued to British mathematician and nuclear physicist Dr. Stephen Hawking.

A monumental shift for patients and their families occurred, enabling communication for formerly silent individuals.

Jack Eichler, with his invention.

This sea change was noted in an article published by the Dorr-Oliver Corporation, the company founded in Westport where Jack worked as a senior design engineer in the early 1980s.

It noted: “Even small children afflicted by cerebral palsy can use ETRAN II, with symbols instead of letters. Jack’s file is 5 to 6 inches thick, with letters of thanks from parents and relatives so grateful for the chance to communicate with paralyzed loved ones.”

Although more advanced, high-tech options are available now to help non-verbal individuals communicate, ETRAN is still used today.

During an appointment, Rob’s communications augmentation specialist pulled out an ETRAN to confirm its present use.

But at the time of Jack and Hugh’s collaboration, the ETRAN Communicator was a brand new and indispensable tool. It was a selfless and generous contribution to humanity, designed to improve the quality of life for those with ALS and other debilitating, speech-robbing diseases.

We have two ETRAN Communicators in our basement. One is the original prototype board that Jack created to communicate with Hugh Neale. The other was produced by the Fran and Warren Rupp Foundation for public use.

Perhaps one of these will come into use for Rob someday.

How strange a coincidence that Jack would invent a device for those suffering from ALS, never knowing that his son would someday be afflicted with this diagnosis.

But also, how poignant it is that Jack made such an effort to help a friend, and in so doing, improved the lives of countless others also suffering with severe physical limitations.

Clearly, the spirit of helping is a quality that Jack passed down to Rob.

Anyone who knows Rob knows he goes above and beyond to help others, always with kindness, concern and love for humanity. For both father and son, I am eternally grateful.

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Westporters — and everyone else — can help raise funds for ALS research, in Rob’s name.

There is a walk October 5 in New Hampshire. Contributins are welcome, even if you can’t be there. Click here to donate.

Rob writes:

Amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s Disease) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe.

I was diagnosed with ALS in August of 2023.

Rob Eichler

But I first learned about it when I was 13. My dad had a colleague with the disease. I visited a few times with my dad. I was somewhat daunted by the hospital bed in the dining room, the immobile father surround by his wife and several sons around my age.

Years later a college professor of mine was afflicted, forcing his early retirement.

In 2012 a work colleague of mine had a brother with ALS. I volunteered to join an ALS 50-mile bike ride to raise money for research and direct patient care support.

I read somewhere that medical students, when they come across ALS, say, “boy, this is the one you don’t want.”  I thought about ALS occasionally, and felt the same way.

Now that I have ALS, I’m discovering it is much more prevalent than I had thought: about one in 300 men, one in 450 women. Many people I meet acknowledge they had a parent, a cousin, an in-law who struggles with ALS or who has succumbed to it.

Now, in addition to raising funds for research, direct patient care support, and advocacy through the ALS Association, I am volunteering to participate in a clinical trial, and several studies to determine bio-markers for ALS.

Thank you for helping me reach my Walk to Defeat ALS fundraising goal. The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.

The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.

I’m walking to change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.

The past 2 years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.

But we can’t stop now. The key to a cure begins with you.

Please consider walking with me or sponsoring me (click here). With your help, we will be able to make a difference in the lives of people affected by this disease.

Roundup: Board Of Ed, Motorcycle Rally, Ben Casparius …

The Westport Board of Education meets this Thursday (September 5, 7 p.m., Staples High School cafeteria). Their full agenda includes:

  • Redistricting
  • Student enrollment report
  • Staffing Report
  • “No Place for Hate”
  • Code of Conduct
  • Second reading of student discipline policy.

The Long Lots School Building Committee also meets on Thursday (September 5, 6 p.m., Town Hall Room 201). An agenda is not yet available.

Westport’s current elementary and middle school map. Possible minor redistricting may be discussed this year.

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Connecticut’s largest annual 9/11 tribute — the CT United motorcycle ride — roars to life this Sunday (September 8, Sherwood Island State Park).

The event honors victims of the terrorist attack, first responders, and also state first responders who lost their lives on the job this year.

The 60-mile motorcycle ride is nonstop. Riders — escorted by police — proceed through intersections and stop lights without stopping, so drivers can expect significant delays.

From Sherwood Island, riders take I-95 to Exit 17. They head up Route 33 (Saugatuck and Riverside Avenues, and Wilton Road), through Wilton, Redding, Bethel, Newtown, Monroe and Trumbull, before ending at Bridgeport’s Seaside Park.

Proceeds from the fundraiser go to the Connecticut Professional Fire Fighters Emergency Relief Fund, and the Hundred Club of Connecticut, for loved ones of law enforcement officers who died in the line of duty.

Motorcycles mass before the start of the 2021 CT Ride United, at Sherwood Island State Park. (Photo/Penny Pearlman)

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Two follow-ups to yesterday’s “06880” Roundup item about Ben Casparius, the 2017 Staples High School graduate who earned his first Major League Baseball win with a 1-2-3 inning in relief Saturday night, for the Dodgers in Phoenix:

Before he was a state champion player for the Wreckers — and Connecticut’s Gatorade Player of the Year –a dominating Casparius won a Little League town title in 3rd grade. Even then, teammates, opponents, coaches and fans knew he was special.

Casparius’ girlfriend has some serious athletic chops herself.

Erin Matson is one of the most famous field hockey players ever. She led the University of North Carolina to 4 NCAA championships. Just a month after graduating, she was named head coach of the Tar Heels. (Hat tip: Jeff Mitchell)

Ben Casparius

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Kevin Gasvoda has not lived in Westport long.

But he’s quickly appreciated the wildlife near his Lees Pond home.

Here’s his “Westport … Naturally” contribution a bald eagle, soaring majestically overhead.

(Photo/Kevin Gasvoda)

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And finally … Happy Labor Day!

(If you’re enjoying your day off — you deserve it! But don’t forget: “06880” is on the job, 24/7/365. Please toss a few coins in our tip jar. Just click here — and thank you!)