Jonathan Greenfield Breathes For ALS

It’s been more than a year and a half since I profiled Jonathan Greenfield.

A lot has happened to the man I called The Most Interesting Person in Westport

A few months after that story, the NYU dropout/photojournalist/documentary filmmaker/surfer/triathlete/tea specialist was diagnosed with cancer.

And ALS.

He is battling both diseases with his trademark optimism, good humor and vigor.

Meanwhile, he continues to focus on others. He’s eagerly assumed a leadership role in a crusade to help everyone — those diagnosed with ALS, and all the rest — breathe better. We can enhance our lives — even live longer — Jonathan says, if we learn proper techniques, then take ice baths.

And — oh, yeah — Jonathan is organizing several events, to raise funds for two causes: breathing workshops, and ALS research.

Jonathan Greenfield and his wife, Iris Netzer-Greenfield.

Jonathan’s ALS diagnosis in December 2018 did not come out of the blue. His father had died not long before of what is also called Lou Gehrig’s Disease. Jonathan’s brother has it too.

Doctors said they caught it early. But the prognosis — muscle weakness, difficulty breathing, paralysis — is grim. Death, Jonathan says, eventually comes from asphyxiation.

He had already heard about the Wim Hof breathing technique. Combined with cold therapy, it’s said to affect the sympathetic nervous system, resulting in greater energy, reduced stress levels, and an augmented immune system.

When a Wim Hof video appeared on Jonathan’s YouTube feed, he took note. He was about to head to Boston to undergo radiation for the liposarcoma in his neck — a difficult procedure in which a mat would be molded to his face, shoulders and upper body. He would be fastened to a table, and lie perfectly still for 15 minutes.

Jonathan Greenfield, in his body mat.

The weekend before the treatment began, Jonathan took a Wim Hof class. He learned the breathing sequence — then took part in a guided ice bath in the snow. “I was on fire!” Jonathan marvels.

He used the breathing method to endure his first treatment. It did even more than he expected. After 2 rounds of breathing, he went into the deepest meditation state he’d ever experienced.

Over the next 5 weeks, Jonathan developed a routine. He awoke in his Cambridge hotel room. He breathed, went to the hospital for radiation, then returned to the hotel to swim, take a sauna and cold shower. Then he sat — in a towel, still wet — on his hotel deck in the freezing cold. For another 40 minutes, Jonathan would breathe and meditate. He felt great.

In the afternoon, he’d work.

Jonathan was excited. He traveled to Spain, for a Wim Hof workshop.

Working with Westporters Brooke Emery Sharfstein and Julie Blitzer, he booked Earthplace for a June breathing event. He brought 300 pounds of ice.

Jonathan Greenfield, deep in an ice bath.

That’s not all. Realizing that breathing could have helped his father’s quality of life in his final days, Jonathan vowed to share what he learned with the world.

He created Breathe4ALS. In August the organization earned 501c3 status. It’s totally volunteer-run. Sixty percent of funds raised go toward research; 30% to breathing sessions for patients, and 10% for website and operational expenses.

It’s pretty clear that neither ALS nor cancer have slowed Jonathan down. They have not dimmed his spirit either.

“Life is fine,” he says forcefully. “Yes, it’s more challenging in some ways. I’ve taken some wild spills, and thankfully haven’t broken anything yet. But this is what life is about: challenges. It’s how you meet them, harass them and overcome them. Otherwise, life is a bore.”

Not long after his diagnoses, Jonathan Greenfield hiked in Spain with Wim Hof (left).

Jonathan does not want anyone to feel sorry for him. Instead, he urges, “come breathe with me. Hike mountains with me. Celebrate all the possibilities with me.”

Jonathan is focusing on his life here, with his wife Iris — an acupuncturist, who practices in New York and Westport — and their 3 children, ages, 10, 8 and 6. His friends, he says, have “selflessly rallied around us.”

On  Thursday, October 17 (7 p.m., MoCA — formerly the Westport Arts Center — at 19 Newtown Turnpike), Breathe4ALS holds its first fundraiser. It features cocktails, bites and an exciting art raffle. Click here for tickets and more information.

Also ahead: A Breathe4ALS event at the Westport Woman’s Club on November 3. Attendees will learn about the Wim Hof Method (and can enjoy hundreds of pounds of ice).

It’s not limited to people with ALS, he emphasizes. “For anyone, this is a great tool for deep meditation and biofeedback.”

A similar Wim Hof session is set for Cherry Hill, New Jersey on January 12 (Katz JCC).

Meanwhile, Jonathan has a 19.8-cubic foot freezer in his garage. He’s adding a sauna. He hopes to invite neighbors, friends — and everyone else — over, to breathe and plunge.

Cool!

Jonathan Greenfield’s home ice bath. The temperature is 32.1 degrees.

5 responses to “Jonathan Greenfield Breathes For ALS

  1. Wow! What a beautiful, inspirational, interesting and powerful story, and man. Thanks for sharing, Dan! I’ll definitely attend his event to support him and learn more!

  2. Jonathan L Maddock

    I look to Jonathan Greenfield with admiration for his personal optimism and his progressive thinking. His attitude and fund raising work is an inspiration.

    Here are a few things about ALS that are either fact, or a shared opinion:

    Radicava is a medication made available in the USA through FDA approval a couple of years ago. ALS sufferers can self administer intravenously. It slows the disease’s progression by 1/3. That is significant.

    There are also several clinical studies currently at stage 3 (of 3) testing. For example, stem cell therapy will wrapping up their final report in the fall of 2020. Pending good findings, FDA approval could come as early as 2021.
    There are more ALS clinical trials than ever before, many will be finalizing very soon (not soon enough!). I believe that a number of these will be proven successful and given FDA approval.

    I understand the general consensus in ALS research is that through new medications ALS can potentially become a manageable chronic disease rather than a fatal disease. I believe this.

    I pray that God will continue to work through the doctors and clinicians to not only slow, but halt ALS disease progression. Moreover, I think that in the years to come it will become possible to reverse ALS degradation. But for now, more more fast-tracked research is needed.

  3. Jonathan is the man!

    And if anyone thinks the ice bath doesn’t wake you up, they’ve never done it. The afterglow lasts for a couple of days. And the breathing is good – even for minimal doses during the day.

    Thanks for raising awareness that breathing is a good thing and. Cold can actually be a friend!

  4. Am Corey Pollard from Ontario ,My dad was diagnosed with ALS February 2018 and i was so confused because i love my dad and i wouldn’t want to loose him so soon and so, i decided to look for a possible solution to get rid of this ALS despite knowing it has no cure as advised by the medical doctor , everyday my dad’s heath depreciate and keeps loosing weight and strength,a friend advised me to try peter wise ALS herbal formula that she used to cure her dad’s heart disease and i was reluctant about it until after a second thought i decided to give it a try because no harm in trying and immediately i contacted him he assure me that my dad will be cured within few weeks of medication and he sent me the medicine and i applied it on my dad as advised by Dr peter wise and within 3 weeks of medication my dad was cured and now my dad is free from ALS it was indeed a miracle, he also have herbal formula for Chronic Obstructive Pulmonary Disease (COPD) , DIABETICS here via email (peterwiseherbalcenter at gmail. com)

    • Jonathan L Maddock

      I do believe in miracles. I do believe in prayer. I do not believe in trolling.
      Please peddle your product elsewhere.

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