Tag Archives: Long QT Syndrome

Roundup: Sherwood Island Pavilion, Passport Scam, Fundraiser Fun …

is there a statewide competition to see which bureaucracy can spend the longest time on a project?

The Connecticut Department of Transportation took the lead, with its Post Road renovation.

But the Department of Energy and Environmental Protection is not sitting back. (Well, actually, they are.)

The popular Sherwood Island State Park pavilion has been closed since January 16 for “assessments for repairs.”

The other day, the Y’s Men of Westport & Weston — which is one of many groups that uses the pavilion — asked for an update.

Parks supervisor Caitlin Munson told Allan Siegert: “We unfortunately do not have any estimated timeframe for the repairs to the pavilion as the project is in the planning phase with the Engineering division, however, it is my best guess that it will remain closed for the remainder of 2026 and the majority, if not all of 2027.

“At this time, I don’t have any details to give, but you’re welcome to check back periodically to see if there are any updates. However- I would say for now while you plan for your events next year, it is safe to assume that the pavilion will remain closed next year.”

That must be some assessment that’s going on.

Sherwood Island pavilion.

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Ruben — the popular, ever-helpful Westport Post Office clerk — has seen a steady stream of customers requesting passports.

They’ve filled out forms online. But because they googled “Passport application,” and clicked on a “service,” they paid an additional fee that they did not need to.

Ruben urges “06880” readers to avoid the excess fee. The least expensive way to get a passport is through the official State Department website: https://travel.state.gov/en/passports.html.

You can also get passport forms at the Westport Library.

Remember: A “service” that you find online is anything but. Go to the official State Department page website!

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Frank Mastrone is always a Levitt Pavilion favorite.

His 10th annual appearance last night was extra special. The Connecticut-born Broadway star brought 2 friends: Westporters Dodie Pettit and Rex Fowler.

Dodie met Mastrone when both were in “Phantom of the Opera.” Rex — Dodie’s husband — is the co-founder of Aztec Two-Step. The duo now perform as Aztec Two-Step 2.0.

From “Send in the Clowns” and “Bring Him Home” to “Like a Rolling Stone” and “The Boxer,” it was a great evening.

And the rain held off until 10 minutes after the show ended.

Rex Fowler, Frank Mastrone and Dodie Pettit. (Photo/Dan Woog)

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Just hours after she was born 9 weeks early, in June of 2022, Shea Greenfield’s heart stopped beating.

Doctors saved her life. But she was diagnosed with Long QT Syndrome. Her heart’s electrical system takes longer than usual to recharge between beats. She is at risk of fainting, seizures, cardiac arrest and sudden death.

There is no cure for the condition. And Shea’s condition is one of the most severe her doctors have ever seen.

Shea’s parents, Mark and Kira, had moved to Westport a year earlier. In addition to educating themselves about LQTS, they began raising funds for the Mayo Clinic, where Dr. Michael Ackerman’s team does cutting-edge research.

In 2023, the Greenfields organized a fundraiser. Others followed. Since then, they’ve raised over $1.4 million.

The next event — “Shank It & Serve It” is September 14, at Birchwood Country Club. The day includes an 18-hole morning golf scramble, 9-hole afternoon scramble, ladies’ point-play tennis tournament and canasta tournament — all capped by a cocktail reception (and pop-up market).

Funds raised go to Hearts in Harmony Foundation, a Long QT Syndrome research non-profit. Various ticket options and sponsorships are available; click here for details.

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Missy Greenberg made friends with this speckled guy at Compo Beach.

And promptly sent it to us, for our “Westport … Naturally” feature.

(Photo/Missy  Greenberg)

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And finally … in honor of all those with, or seeking, passports (item above):

(You don’t have to travel anywhere to support “06880,” Just click here to make a tax-deductible donation. Thank you!)

“Shake It For Shea”: Inspirational Gala Raises Heartfelt Funds

Just hours after she was born 9 weeks early, in June of 2022, Shea Greenfield’s heart stopped beating.

Doctors saved her life. But she was diagnosed with Long QT Syndrome. Her heart’s electrical system takes longer than usual to recharge between beats. She is at risk of fainting, seizures, cardiac arrest and sudden death.

There is no cure for the condition. And Shea’s condition is one of the most severe her doctors have ever seen.

Shea’s parents, Mark and Kira, had moved to Westport a year earlier. In addition to educating themselves about LQTS, they began raising funds for the Mayo Clinic, where Dr. Michael Ackerman’s team does cutting-edge research.

Last year, the Greenfields organized a fundraiser. The day before the event — set for an outdoor space — Canadian wildfires made the venue impossible.

In 18 hours, caterer OnTheMarc managed to relocate everything to The Warehouse at Fairfield Theatre Company.

It was an amazing effort. And it raised $290,000 for Dr. Ackerman’s lab. “The turnout, love and support of this community has been incredible,” the Greenfields say. “In good times and bad, people show up.”

The large crowd, at last year’s “Shake it For Shea” fundraiser.

That’s the yin and yang of the family’s journey. They face a devastating disease, but they’ve been buoyed by so many people they only recently met.

The Greenfields continue to pay it forward.

In the aftermath of that first “Shake it for Shea” gala, they launched Hearts in Harmony Foundation. The non-profit is a fundraising vehicle for Dr. Ackerman’s further research.

The 2nd annual “Shake it for Shea” fundraiser for the Mayo Clinic doctor is set for June 6 — back at the FTC Warehouse.

The great Bobby Attiko Band — who performed at Mark and Kira’s 2017 wedding — has again donated their services. Many other vendors are working pro bono too.

The night of eating, drinking and dancing runs from 7:30 to 11:30 p.m.

The effects of the research that the funds enable will last far longer.

(Click here for tickets, and more information. Can’t make it? Donations are always welcome, at the same link. To donate through a donor-advised fund or a company, or for questions, email markgreenfield1@gmail.com