Tag Archives: Stevens Johnson Syndrome

Remembering Rachel Doran

Two weeks ago, “06880” reported on Rachel Doran’s battle.

The rising senior at Cornell University  — a National Merit Commended Scholar, talented Players costume designer, and founder of “Rachel’s Rags,” a company that makes intricate cotton and fleece pajama tops and bottoms — was in critical condition.

In July she was diagnosed with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis, a rare reaction to common medications that resulted in severe burns to 95% of her body. She then developed Adult Respiratory Distress Syndrome — another rare and life-threatening syndrome.

Rachel Doran

Last night — surrounded by her family — Rachel died peacefully. Her family said:

 True to Rachel’s spirit and with the same fervor she had for everything she took on, she fought the most difficult health issues with tenacity and grace.

At this time Alan, Lisa and Ellie ask that you keep Rachel’s memory close to your hearts as arrangements are made to celebrate her amazing life. Her beauty, kindness, style and wit were second to none. We will cherish the light she brought to so many people along the way.

Services will be held Wednesday (August 22, Temple Israel), at a time to be determined.

Rachel Doran’s Journey

This month, Rachel Doran should be completing a summer internship in New York. She should be looking forward to her senior year at Cornell University, as a fashion design major with a minor in business.

Instead, the 2015 Staples High School graduate — a National Merit Commended Scholar, talented Players costume designer, and founder of “Rachel’s Rags,” a company that makes intricate cotton and fleece pajama tops and bottoms — is in critical condition at Columbia Presbyterian Hospital’s Center for Acute Respiratory Failure and ECMO Program.

Last month Rachel was diagnosed with Stevens Johnson Syndrome and Toxic Epidermal Necrolysis, a rare reaction to common medications that resulted in severe burns to 95% of her body.

Rachel Doran

She was treated at Bridgeport Hospital’s Connecticut Burn Center for 2 weeks, before being transferred to New York for the treatment of Adult Respiratory Distress Syndrome — another rare and life-threatening syndrome. She is in the ICU, on a special lung protocol called ECMO and dialysis.

Her skin is slowly beginning to heal. But Rachel has a collapsed lung and renal failure. She is being kept as comfortable as possible, and is supported by a superb hospital staff.

Rachel’s family has been by her side for 3 weeks — and faces a long road. She could be at Columbia Presbyterian for months.

Her parents are staying in a New York hotel, while their extended family tries to maintain a sense of normalcy for Rachel’s sister Ellie in Westport.

Between hospital bills, the hotel and loss of wages, the financial ramifications will be vast. Friends created a GoFundMe page to lighten the load.

Everyone who knows Rachel calls her “amazing.” Now is the time for Westport to offer her and her family some amazing help.

Click here to contribute to the Dorans’ GoFundMe page.