It’s been a year since Patty Haberstroh’s family started the Hot Pepper Challenge, to raise funds for ALS. Three months earlier, she’d been diagnosed with the neurodegenerative disease.
It’s been 3 years since the Frates family first did the Ice Bucket Challenge, for the same important cause.
This morning, Patty — the energetic, creative program specialist in Westport’s Human Services Department — her family, and the Frateses, were in New York. They rang the opening NASDAQ bell, in their continuing efforts to raise both funds and awareness of ALS.
They were joined by Westporter Paul LaHiff and his family. He too has ALS (also called Lou Gehrig’s Disease). Also on hand: ALS Foundation members, and representatives of the company that produces the Radicava drug.
The ceremony was televised live on CNBC. And in case anyone missed Patty with her pepper shirt — well, look here:
Patty continues to advocate for ALS causes — and treatments. Yesterday, she was interviewed by WSHU. Click here for that inspiring story.